News | Entertainment
17 Jan 2026 12:21
NZCity News
NZCity CalculatorReturn to NZCity

  • Start Page
  • Personalise
  • Sport
  • Weather
  • Finance
  • Shopping
  • Jobs
  • Horoscopes
  • Lotto Results
  • Photo Gallery
  • Site Gallery
  • TVNow
  • Dating
  • SearchNZ
  • NZSearch
  • Crime.co.nz
  • RugbyLeague
  • Make Home
  • About NZCity
  • Contact NZCity
  • Your Privacy
  • Advertising
  • Login
  • Join for Free

  •   Home > News > Entertainment

    Jesy Nelson has thanked fans for their love and support after she revealed her daughters have a rare genetic condition

    The former Little Mix singer - who gave birth to her and fiance Zion Foster's twins Ocean Jade and Story Monroe prematurely last May after a difficult pregnancy - revealed on Sunday (04.01.26) that her babies have SMA1 (Spinal Muscular Atrophy), which she described as "the most severe muscular disease", and she is grateful for the "beautiful messages" she has received following the news.


    She said in a new Instagram video: "Hey guys I just wanted to come on here to basically say thank you genuinely so much from the bottom of my heart for the outpour of support and beautiful messages for me and other families dealing with this horrible diagnosis.

    "I am genuinely so overwhelmed from the level of support and I just want to say thank you for sharing, learning about it, took the time to watch it and send their beautiful messages, thank you I appreciate it so much."

    The 34-year-old singer has also vowed to campaign for babies to be screened for the condition at birth.

    She added: "I also wanted to let you guys know, I am starting a petition to try and get the newborn screening heel prick testing from birth and I just need you to know that I am so determined to make this happen and I am going to fight as much as I can to make this part of the newborn screening.

    "It's currently under review so I will keep you updated and also I will be on This Morning tomorrow talking about my baby girls. I love you all so much and I can't thank you enough for the support. We have along way to go but I love you so much."

    At the weekend, Jesy told how her daughters will "never walk" and have lost the ability to hold up their heads as a result of the condition.

    She said in an emotional video: "The girls have now been diagnosed with a severe muscle disease called SMA type one. For those of you who don't know what SMA type one is, it's a severe muscular disease that a baby can get.

    "It's done for Spinal Muscular Atrophy, which can affect, well it does affect every muscle in the body, down to legs, arms, breathing, swallowing.

    "And essentially, what it does is, over time, it kills the muscle to the body, and if it's not treated in time, your baby's life expectancy will not make it past the age of two.

    "When they assessed the girls at Great Ormond Street, we were told that they will never be able to walk and never regain their neck strength, so they will be disabled."

    Jesy added that the babies have started having treatment and claimed that would have died without it.

    She said: "And so the best thing we can do right now is to get the treatment, and then just hope for the best. So hopefully the girls have had their treatment, which you're so grateful for.

    "Because if they don't have it, they will die."

    © 2026 Bang Showbiz, NZCity

     Other Entertainment News
     17 Jan: Taylor Swift has donated a "generous gift" to Brad Paisley's non-profit organisation
     17 Jan: Nick Reiner's former attorney insists his client is "not guilty" despite stepping down from his case
     17 Jan: Chelsea Handler has taken a shot at Timothee Chalamet for his boastful comments in interviews
     17 Jan: Kiefer Sutherland has been arrested after allegedly assaulting a rideshare driver, according to police
     17 Jan: Abbey Clancy was taken to hospital in Dubai with a "serious injury" after breaking a nail
     17 Jan: Jackson Browne's son Ethan Browne died due to the effects of fentanyl, methamphetamine, and lidocaine
     17 Jan: Nikki Glaser cut a joke about Brad Pitt from her Golden Globes performance
     Top Stories

    RUGBY RUGBY
    After Scott Robertson, the All Blacks face a deeper question than who coaches next More...


    BUSINESS BUSINESS
    Finance Minister Nicola Willis has dropped some hints about this year's budget More...



     Today's News

    Rugby League:
    Nelson Asofa-Solomona is calling out all-comers from the NRL following a statement win in his professional boxing debut 11:57

    Entertainment:
    Taylor Swift has donated a "generous gift" to Brad Paisley's non-profit organisation 11:53

    Entertainment:
    Nick Reiner's former attorney insists his client is "not guilty" despite stepping down from his case 11:23

    Education:
    Students are being reminded not to be too harsh on themselves, as NCEA results come out 11:07

    International:
    Today in History, January 17: When Lance Armstrong finally admitted to Oprah he doped his way to seven Tour de France titles 10:57

    Entertainment:
    Chelsea Handler has taken a shot at Timothee Chalamet for his boastful comments in interviews 10:53

    Law and Order:
    The man accused of killing conservative activist Charlie Kirk has appeared in court in the US 10:47

    Environment:
    Sarah Blizzard's stunning sportsmanship helps Dutch bobsledders achieve Winter Olympics dream 10:27

    Law and Order:
    Police in the Far North are encouraging would be cops on South Island waiting lists to make the trip up 10:27

    Entertainment:
    Kiefer Sutherland has been arrested after allegedly assaulting a rideshare driver, according to police 10:23


     News Search






    Power Search


    © 2026 New Zealand City Ltd