News | Entertainment
12 Jan 2026 17:45
NZCity News
NZCity CalculatorReturn to NZCity

  • Start Page
  • Personalise
  • Sport
  • Weather
  • Finance
  • Shopping
  • Jobs
  • Horoscopes
  • Lotto Results
  • Photo Gallery
  • Site Gallery
  • TVNow
  • Dating
  • SearchNZ
  • NZSearch
  • Crime.co.nz
  • RugbyLeague
  • Make Home
  • About NZCity
  • Contact NZCity
  • Your Privacy
  • Advertising
  • Login
  • Join for Free

  •   Home > News > Entertainment

    Jesy Nelson has thanked fans for their love and support after she revealed her daughters have a rare genetic condition

    The former Little Mix singer - who gave birth to her and fiance Zion Foster's twins Ocean Jade and Story Monroe prematurely last May after a difficult pregnancy - revealed on Sunday (04.01.26) that her babies have SMA1 (Spinal Muscular Atrophy), which she described as "the most severe muscular disease", and she is grateful for the "beautiful messages" she has received following the news.


    She said in a new Instagram video: "Hey guys I just wanted to come on here to basically say thank you genuinely so much from the bottom of my heart for the outpour of support and beautiful messages for me and other families dealing with this horrible diagnosis.

    "I am genuinely so overwhelmed from the level of support and I just want to say thank you for sharing, learning about it, took the time to watch it and send their beautiful messages, thank you I appreciate it so much."

    The 34-year-old singer has also vowed to campaign for babies to be screened for the condition at birth.

    She added: "I also wanted to let you guys know, I am starting a petition to try and get the newborn screening heel prick testing from birth and I just need you to know that I am so determined to make this happen and I am going to fight as much as I can to make this part of the newborn screening.

    "It's currently under review so I will keep you updated and also I will be on This Morning tomorrow talking about my baby girls. I love you all so much and I can't thank you enough for the support. We have along way to go but I love you so much."

    At the weekend, Jesy told how her daughters will "never walk" and have lost the ability to hold up their heads as a result of the condition.

    She said in an emotional video: "The girls have now been diagnosed with a severe muscle disease called SMA type one. For those of you who don't know what SMA type one is, it's a severe muscular disease that a baby can get.

    "It's done for Spinal Muscular Atrophy, which can affect, well it does affect every muscle in the body, down to legs, arms, breathing, swallowing.

    "And essentially, what it does is, over time, it kills the muscle to the body, and if it's not treated in time, your baby's life expectancy will not make it past the age of two.

    "When they assessed the girls at Great Ormond Street, we were told that they will never be able to walk and never regain their neck strength, so they will be disabled."

    Jesy added that the babies have started having treatment and claimed that would have died without it.

    She said: "And so the best thing we can do right now is to get the treatment, and then just hope for the best. So hopefully the girls have had their treatment, which you're so grateful for.

    "Because if they don't have it, they will die."

    © 2026 Bang Showbiz, NZCity

     Other Entertainment News
     12 Jan: Golden Globes 2026 winners list: Owen Cooper, Stephen Graham win for Adolescence performances
     12 Jan: Khloe Kardashian's son Tatum is the "only boy allowed in [her] bed at the moment"
     12 Jan: Jenny McCarthy has vowed never to return to The View
     12 Jan: Bowen Yang felt like it was "time" for him to leave Saturday Night Live
     12 Jan: Los Angeles Mayor Karen Bass's team have hit out at Spencer Pratt's bid to take her job
     12 Jan: Bunnie Xo's life-long mission is to ensure "people known that they are loved"
     12 Jan: Ozzy Osbourne has been visiting his family in their dreams
     Top Stories

    RUGBY RUGBY
    All Black halfback-in-waiting Dylan Pledger will miss 12 months of rugby after rupturing an ACL during pre-season training with the Highlanders More...


    BUSINESS BUSINESS
    A group of Asian supermarkets and retailers have gone into liquidation across Auckland owning millions More...



     Today's News

    Living & Travel:
    Golden Globes key moments 2026: Australian Rose Byrne wins best comedy nod, Amy Poehler takes out Best Podcast nod 17:37

    Business:
    A group of Asian supermarkets and retailers have gone into liquidation across Auckland owning millions 17:27

    Entertainment:
    Golden Globes 2026 winners list: Owen Cooper, Stephen Graham win for Adolescence performances 17:27

    Entertainment:
    Khloe Kardashian's son Tatum is the "only boy allowed in [her] bed at the moment" 17:23

    International:
    Golden Globes 2026 live updates: Rose Byrne wins first-ever Globe, One Battle After Another and Adolescence win big 17:17

    Rugby:
    All Black halfback-in-waiting Dylan Pledger will miss 12 months of rugby after rupturing an ACL during pre-season training with the Highlanders 16:57

    Entertainment:
    Jenny McCarthy has vowed never to return to The View 16:53

    Entertainment:
    Bowen Yang felt like it was "time" for him to leave Saturday Night Live 16:23

    Law and Order:
    Investigations are still ongoing into the deaths of two people at a property in Bay of Plenty's Pukehina earlier this month 16:17

    Entertainment:
    Los Angeles Mayor Karen Bass's team have hit out at Spencer Pratt's bid to take her job 15:53


     News Search






    Power Search


    © 2026 New Zealand City Ltd