News | Entertainment
14 Jan 2026 11:14
NZCity News
NZCity CalculatorReturn to NZCity

  • Start Page
  • Personalise
  • Sport
  • Weather
  • Finance
  • Shopping
  • Jobs
  • Horoscopes
  • Lotto Results
  • Photo Gallery
  • Site Gallery
  • TVNow
  • Dating
  • SearchNZ
  • NZSearch
  • Crime.co.nz
  • RugbyLeague
  • Make Home
  • About NZCity
  • Contact NZCity
  • Your Privacy
  • Advertising
  • Login
  • Join for Free

  •   Home > News > Entertainment

    Jesy Nelson has thanked fans for their love and support after she revealed her daughters have a rare genetic condition

    The former Little Mix singer - who gave birth to her and fiance Zion Foster's twins Ocean Jade and Story Monroe prematurely last May after a difficult pregnancy - revealed on Sunday (04.01.26) that her babies have SMA1 (Spinal Muscular Atrophy), which she described as "the most severe muscular disease", and she is grateful for the "beautiful messages" she has received following the news.


    She said in a new Instagram video: "Hey guys I just wanted to come on here to basically say thank you genuinely so much from the bottom of my heart for the outpour of support and beautiful messages for me and other families dealing with this horrible diagnosis.

    "I am genuinely so overwhelmed from the level of support and I just want to say thank you for sharing, learning about it, took the time to watch it and send their beautiful messages, thank you I appreciate it so much."

    The 34-year-old singer has also vowed to campaign for babies to be screened for the condition at birth.

    She added: "I also wanted to let you guys know, I am starting a petition to try and get the newborn screening heel prick testing from birth and I just need you to know that I am so determined to make this happen and I am going to fight as much as I can to make this part of the newborn screening.

    "It's currently under review so I will keep you updated and also I will be on This Morning tomorrow talking about my baby girls. I love you all so much and I can't thank you enough for the support. We have along way to go but I love you so much."

    At the weekend, Jesy told how her daughters will "never walk" and have lost the ability to hold up their heads as a result of the condition.

    She said in an emotional video: "The girls have now been diagnosed with a severe muscle disease called SMA type one. For those of you who don't know what SMA type one is, it's a severe muscular disease that a baby can get.

    "It's done for Spinal Muscular Atrophy, which can affect, well it does affect every muscle in the body, down to legs, arms, breathing, swallowing.

    "And essentially, what it does is, over time, it kills the muscle to the body, and if it's not treated in time, your baby's life expectancy will not make it past the age of two.

    "When they assessed the girls at Great Ormond Street, we were told that they will never be able to walk and never regain their neck strength, so they will be disabled."

    Jesy added that the babies have started having treatment and claimed that would have died without it.

    She said: "And so the best thing we can do right now is to get the treatment, and then just hope for the best. So hopefully the girls have had their treatment, which you're so grateful for.

    "Because if they don't have it, they will die."

    © 2026 Bang Showbiz, NZCity

     Other Entertainment News
     14 Jan: Dolly Parton "wishes she could be" at her upcoming 80th birthday celebration at the Grand Old Opry
     14 Jan: Millie Bobby Brown cried when she saw the Stranger Things finale for the first time
     14 Jan: Mickey Rourke has surrendered a shotgun to authorities
     14 Jan: Ashley Tisdale has urged her followers to "find strength within" amid her "toxic" mom group drama
     14 Jan: Timothy Busfield is being investigated over allegations of child sex abuse
     14 Jan: Ariana Grande is determined to "challenge" herself as an actress
     14 Jan: Gracie Abrams has hinted that she's open to an acting role
     Top Stories

    RUGBY RUGBY
    The longest-tenured coach of a single North American professional sports franchise has resigned More...


    BUSINESS BUSINESS
    Why unlocking Venezuelan oil won’t mean much for US energy prices More...



     Today's News

    Tennis:
    Ben Shelton's determined to close the tennis gap to Jannik Sinner and Carlos Alcaraz this year 11:07

    Technology:
    Rare verified footage of Iran's protests posted online shows how the movement started and how it is growing 10:57

    Entertainment:
    Dolly Parton "wishes she could be" at her upcoming 80th birthday celebration at the Grand Old Opry 10:53

    Rugby:
    The longest-tenured coach of a single North American professional sports franchise has resigned 10:47

    Law and Order:
    Horowhenua's Mayor is shocked by a deadly shooting at a beach settlement near Levin overnight 10:47

    Tennis:
    A simple goal for Ben Shelton this week in his return to Auckland as the ASB Tennis Classic's top seed 10:47

    International:
    International central bankers throw support behind US Federal Reserve chair Jerome Powell 10:37

    National:
    Viruses aren’t all bad: In the ocean, some help fuel the food web – a new study shows how 10:27

    Cricket:
    The Bangladesh Cricket Board stance remains against their side playing their T20 World Cup matches in India next month due to security concerns 10:27

    Entertainment:
    Millie Bobby Brown cried when she saw the Stranger Things finale for the first time 10:23


     News Search






    Power Search


    © 2026 New Zealand City Ltd