News | Health & Safety
11 Aug 2022 18:15
NZCity News
NZCity CalculatorReturn to NZCity

  • Start Page
  • Personalise
  • Sport
  • Weather
  • Finance
  • Shopping
  • Jobs
  • Horoscopes
  • Lotto Results
  • Photo Gallery
  • Site Gallery
  • TVNow
  • Dating
  • SearchNZ
  • NZSearch
  • Crime.co.nz
  • RugbyLeague
  • Make Home
  • About NZCity
  • Contact NZCity
  • Your Privacy
  • Advertising
  • Login
  • Join for Free

  •   Home > News > Health & Safety

    A call for greater support for children living with rare disorders

    A call for greater support for children living with rare disorders


    Kiwi kids make up half of 300-thousand New Zealanders who have a rare disease including Spinal Muscular Atrophy.

    Up to 24 percent of children living with SMA are absent from school more than 30 days a year, with 13 percent missing more than 60 days.

    Patient advocate Fiona Tolich says these kids face a life of extreme mental and physical hardship.

    She says many children with SMA require specialised equipment to stay upright.

    © 2022 Newstalk ZB, NZCity

     Other Health & Safety News
     11 Aug: New Zealand's Covid infections continue to fall
     10 Aug: Te Whatu Health NZ is being urged to adopt a new model to ease the workforce crisis
     10 Aug: How Olivia Newton-John's public journey with cancer created a legacy that's helped thousands
     09 Aug: New Zealand has 5169 new community cases today
     09 Aug: Scholarships are being rolled out to get working age people back to the West Coast
     08 Aug: A Waikato doctor who overlooked a woman's terminal cancer says he was tired, and may not have read the report
     08 Aug: Several nurses failed their clinical responsibilities after an elderly woman died, a Health and Disability Commission report has found
     Top Stories

    RUGBY RUGBY
    South Africa will start with hooker Joseph Dweba in Saturday's second Rugby Championship Test against New Zealand after Bongi Mbonambi withdrew due to a knee injury picked up in training More...


    BUSINESS BUSINESS
    Gas users and experts call for federal crackdown on east coast 'gas cartel' More...



     Today's News

    Entertainment:
    Kevin Bacon wants to help end conversion therapy 17:50

    Business:
    Gas users and experts call for federal crackdown on east coast 'gas cartel' 17:49

    Rugby League:
    The Warriors are relieved to be back in Auckland and promising an improved showing in front of their home fans tomorrow night 17:29

    Entertainment:
    Beyonce has hailed Madonna a "masterpiece genius" 17:20

    Rugby League:
    The Warriors have ditched the classroom to focus on energy levels in the lead-up to their NRL clash against the Bulldogs at Mount Smart tomorrow night 17:09

    Entertainment:
    Kenan Thompson thinks it is "ridiculously exciting" that he's going to host the Emmy Awards 16:50

    Rugby League:
    The NRL is in shock following the death of premiership-winning coach Paul Green, aged 49 16:29

    Entertainment:
    Joe Exotic hopes a former '90 Day Fiance' star can help him get released from prison 16:20

    Law and Order:
    A third murder charge - in relation to the death of a 33-year-old Taranaki father 16:19

    Law and Order:
    Facebook gave US police access to private messages in abortion case against mother and daughter 16:09


     News Search






    Power Search


    © 2022 New Zealand City Ltd